2020 Lone Star Board Ballot

Amanda Wolgamott

Amanda joined the Lone Star Chapter Board in 2015 as the Secretary and has held that position until now. As the mother of two boys, one with severe hemophilia, she has stayed involved in the bleeding disorder community since her son’s diagnosis in 2012.  In addition to being a team captain at the annual Unite Walk in Houston, she and her family also attend the Texas Bleeding Disorders Conference and NHF Inhibitor Summit each year.

Amanda feels that community is the best way for new parents of people with bleeding disorders to find their path forward, and wants to give back to the chapter that helped her out. She also volunteers at her children’s school, and is the Camp Administrator at Camp Ailihpomeh, Texas’ camp for boys with bleeding disorders.

Amanda is currently serving as our Lone Star Chapter Secretary.

Dan Bond

I’m a 65 year old with severe factor 9 deficiency. I have been involved in the Lone Star Chapter for 10 years, and would like to continue to serve.

Dan is currently serving as our Lone Star Chapter President.

Heather Pohl

Heather has a Masters of Social Work and has been employed with Harris County Protective Services for 22 years. She is the aunt of two nephews, one of whom is a young adult with severe hemophilia A. She has been involved in the hemophilia community as a volunteer in many ways over the past 19 years, whether helping out at fundraisers, babysitting at events, or speaking at the Texas Bleeding Disorders Conference. She has been a camp counselor at Camp Ailihpomeh for the past 15 years. Heather recognizes the importance of community for people with bleeding disorders and wants to serve on the Board so she can share that community with more people.

Laura Portales

I am a 42-year-old mother of three. Two of my daughters and myself are affected by a bleeding disorder. I discovered that my children were affected by Von Willebrand’s when they were 7 and 4 years old and I became a member of the Lone Star Chapter immediately. When I joined the Lone Star Chapter 6 years ago, I felt so welcomed by everyone. I felt like I finally was able to understand what my daughters were going through. As I started to understand more about bleeding disorders I became an advocate for us all living with a bleeding disorder. I was honored to become an ambassador for Texas Bleeding Disorder Coalition two years ago. Every year that passes I am more involved with The Lone Star Chapter. I would love to take my involvement in the chapter to the next level by being a board member. I am so passionate about this cause and would be ecstatic to have an opportunity to be a board member.

Juan Guzman

I am 29 years old I am a fellow hemophiliac with type a severe. I have been a camp counselor for 11 years now. I would love to be more involved in the community because as I am getting older I’m realizing the importance of it, and the impact that it can have in a young man’s life.

James Setliff

I have served on the Lone Star Chapter Board for 12 years. I am a community member with Hemophilia A (Mild). I have served as a Trustee, Treasurer, and currently serve as our 2nd Vice President. I have also served a 6 year term as our local Lone Star Chapter representative on the HFA board. I truly enjoy representing the local community and hope to continue to serve you in the future.

James is currently serving as our Lone Star Chapter 2nd Vice President.

Gail Boggs

Wife. Mom. Advocate.

I am blessed to be part of our local bleeding disorder community and look forward to having the opportunity to serve support and encourage families in our area.